“Presently it is only the most severe of the severe who are eligible,” Mrs Bladon explained. “Evie had to nearly die before this provision kicked in for us. Until then we were up every night with her.
“It was so hard to keep functioning on no sleep night after night, looking after your other children and going to work. The respite care we got from Camp Simcha was a life-saver. It helped us keep our heads above water.”
The hope is that sufficient funds will be raised to make Evie’s Night Owls an ongoing service. “This will be Evie’s legacy.”
Its first fundraiser will be a sale of 200 new party dresses for girls and teenagers in Mill Hill on October 19. There will be an option for people to sponsor those who cannot afford one.
To find out more visit this link.