Become a Member
Books

A man, a boy, and a story about autism

March 23, 2016 13:05
Strong bond: Jem Lester and his son Noah

By

Gerald Jacobs,

Gerald Jacobs

3 min read

Former JC journalist Jem Lester is clear about the distinction between - on the one hand - himself and his severely autistic son, Noah, and - on the other- Ben Jewell, the protagonist of Lester's debut novel Shtum, and his severely autistic son, Jonah.

But it is a subtle distinction; the parallels are extraordinarily close. Both fathers, the actual and fictional, show enormous emotional dedication to their son and many of the episodes in the book, both funny and poignant, are directly taken from the author's own experience.

Crucially, Lester was able find the mental strength to write Shtum - in which he makes Ben's relationship with Jonah more draining than his own with Noah - because he has always felt secure in his demanding paternal role. When people ask how he came to terms with having an autistic son, he says: "I didn't have a huge problem dealing with it. By the time we got the diagnosis - he wasn't speaking and, at 15, he still doesn't speak - I already loved and worshipped him."

But what was draining in real life was the protracted and expensive tribunal appeal, launched by Jem Lester and his ex-wife, against their local council's decision not to subsidise Noah's place at a residential secondary school for autistic children. It is upon this that Lester has built Shtum's quick-fire narrative.

To get more from Life, click here to sign up for our free Life newsletter.

Editor’s picks