By Jonathan Kalmus, May 7, 2009
The last screening for Tay Sachs outside of London is due to take place in Manchester next week.
Screening drives for the fatal genetic disorder have traditionally been run inside Jewish schools, paid for by the Tay Sachs Screening Programme. However, the charity, run by north Manchester-based doctor of genetics Sybil Simon, is due to close when she retires.
“For the past 20 years I have run it and fundraised for it. There is no one to take this over. No one wants to do voluntary work anymore.”