Single-minded support

By Jennifer Lipman, March 1, 2012
Joey Levene

Joey Levene

The parents of a six-year-old boy with a life-threatening genetic disorder hope that a charity single in support of medical research will be a chart smash.

From Sunday, iTunes will sell downloads of Nobody Knows Their Time, a song about a child with Duchenne Muscular Dystrophy written and performed by Mark Emmins.

Profits will go to Duchenne Now, founded recently by the parents of children with the progressive muscle-wasting disease, including Tracy and Tony Levene from Prestwich.

Their son Joey, a pupil at Manchester's King David Primary, was diagnosed at 17-months-old.

Duchenne Now will support research into treatment for the condition, which is currently incurable.

"He asks me when doctors are going to be able to make his muscles well, which breaks my heart," Mr Levene said. "I say to him that all the doctors are trying and I promise him that we will try our best."

The Levenes also want the track played on local radio stations to increase understanding of the condition. "The song is about when you have got limited time with the person you love," Mr Levene explained.

Watch the video here.

Last updated: 5:38pm, March 1 2012